Information for Kids & Adults
What is Congenital Heart Disease (CHD)
Congenital Heart Disease accounts for 30%
of deaths of Children under five all around the world
every week 42 babies are born with CHD.
A wopping 80% of all cases of CHD
remain unsolved because Doctors have no idea
what causes this deadly disease.
Our task is to find the cure for Congenital Heart Disease
it is greatly unknown and much development and research
is needed into it's cause and cure.
Congenital Heart Disease
is often first detected when the doctor hears an abnormal heart
sound or heart murmur when listening to the heart.
Depending on the type of murmur
he or she may order further testing such as
Echocardiogram, Cardiac catheterization
Chest X-Ray, Electrocardiogram (ECG/EKG)
Magnetic Resonance Imaging (MRI)
or other diagnostic testing.
The warning signs of congenital heart disease
in infants and children may include a heart murmur
or abnormal heart sound
cyanosis (a bluish tint to the skin, fingernails and/or lips)
fast breathing, poor feeding, poor weight gain
an inability to exercise and excessive sweating.
Serious medical research into the heart’s engine-like performance
began around one hundred years ago
and building on the discoveries made
researchers turned their attention to what by the 1950s
had become the single biggest cause of death
in the western world – premature coronary artery disease.
The main risk factors in our ‘heart attack epidemic’ in adults
were quickly found to be high fat diets
smoking and high blood pressure.
Armed with these insights governments around the world
have induced people to modify their lifestyles for the better
and the results are truly astounding.
Since its peak in 1967 age-adjusted rates of mortality
from coronary artery disease have been cut by three quarters
and are still falling
we now know a lot about coronary artery disease
but still have a lot to learn about the other significant
source of cardiac disease – the heart muscle itself.
If diseased heart muscle loses pumping power
the obvious cure is to return the power to normal
but it’s difficult to treat a disease
and muscle tissue that we don’t completely understand.
At this stage we know so little about the effects
of experimental drugs let alone more radical solutions
like artificial hearts or heart transplants from animals
so many patients are still left with human heart transplant
as their only option however there are never enough donors
to meet the demand.
The only long term solution is for medical research
to unlock the mysteries of heart muscle tissue
and heart muscle disease
so we can develop effective sustainable treatments.
To this end we at The Shaun Miller Foundation
are working with our partners
The Victor Chang Cardiac Research Institute Australia
to complete this baffling cure to (CHD)
and advance our understanding
so future generations can benefit
from more effective medicine care and prevention.