The Shaun Miller Foundation 'Ambassador'
Hello my name is Sophie Nester and I am a very proud Ambassador for
The Shaun Miller Foundation.
I am 24 years old and live with both my parents
and my younger brother, for me turning 24 or any age
is a massive milestone in my life and here is why . . .
When I was born I was born with hyper plastic left ventricle syndrome
my left and right ventricle in my heart
where the other way around and I had a hole in the heart!
As soon as I was born I was raced to the
Royal Children's Hospital Melbourne
where I had my very first Open Heart Operation . . .
Days later I had my 2nd Open Heart Operation
and I finally had a Fontan at age 6
which was my 3rd Open Heart Operation.
I also was also born with Sacral Agencies
which is a form of Spina Bifida so the start of my life
has been quite tough to say the least!
I am now 21 years old and I have just had
my 10th major operation in total I have had
3 Open Heart Operations
5 Operations on my feet
2 Operations on my bladder!
10 operations in 20 years
I think that is a dam good effort!
although I have been though so much in so little time
I have been able participate in some so called
In 2011 I made my Deb in 2013
I graduated year 12
I got my PPlates and own my own car
I go on lot's of camps with either 'HeartKids'
Chips or my local Church
I attended a recovery camp for almost 6 years
and I absolutely loved it!
It was such an amazing way to meet young people
with similar conditions as you
you got to share similar experience's and stories
with each other and it is was a wonderful way
to meet such amazing and strong life line friends.
Today I am a team leader within my local Church
and I am a youth leader at Empire Youth in Bendigo
I love spending time with my friends and family
they have been the best support I could ask for
and without them I wouldn’t be where
I am today or the person I am today.
So life for me is quite interestingly busy
and a whole heap of fun
I don’t let my Heart Disease or Spina Bifida
define who I am . . . I define it!
I always try to 'Live Life To The Fullest'
as Shaun would say
because no one knows whats going to happen!
I am very lucky and so blessed to have so many people
supporting me through life's journey including
the wonderfil Shaun Miller Foundation
without you guys I don’t know where we would be!
I thank God everyday for where I am today!
I'm so blessed to have so many amazing friends
and family supporting me through everything!
And I am very proud to be an Ambassador
for my loving and precious friend Shaun
and his wonderful Foundation
that is helping in my today journey's.
'Live Life To The Fullest'