Sophie Nester

The Shaun Miller Foundation  'Ambassador'

Hello my name is Sophie Nester and I am a very proud Ambassador for

The Shaun Miller Foundation. 


I am 24 years old and live with both my parents

and my younger brother, for me turning 24 or any age

is a massive milestone in my life and here is why . . .


When I was born I was born with hyper plastic left ventricle syndrome 

my left and right ventricle in my heart

where the other way around and I had a hole in the heart!

As soon as I was born I was raced to the

Royal Children's Hospital Melbourne

where I had my very first Open Heart Operation . . .

Days later I had my 2nd Open Heart Operation

and I finally had a Fontan at age 6

which was my 3rd Open Heart Operation.

I also was also born with Sacral Agencies

which is a form of Spina Bifida so the start of my life

has been quite tough to say the least! 

I am now 21 years old and I have just had

my 10th major operation in total I have had

3 Open Heart Operations

5 Operations on my feet

 2 Operations on my bladder!

10 operations in 20 years

I think that is a dam good effort!

although I have been though so much in so little time

I have been able participate in some so called

‘normal’ activities.

In 2011 I made my Deb in 2013

I graduated year 12

I got my PPlates and own my own car 

I go on lot's of camps with either 'HeartKids'

Chips or my local Church

I attended a recovery camp for almost 6 years

and I absolutely loved it!


It was such an amazing way to meet young people

with similar conditions as you

you got to share similar experience's and stories

with each other and it is was a wonderful way

to meet such amazing and strong life line friends.

Today I am a team leader within my local Church

and I am a youth leader at Empire Youth in Bendigo

I love spending time with my friends and family

they have been the best support I could ask for

and without them I wouldn’t be where

I am today or the person I am today.

So life for me is quite interestingly busy

and a whole heap of fun 

I don’t let my Heart Disease or Spina Bifida

define who I am . . . I define it!

I always try to 'Live Life To The Fullest'

as Shaun would say

because no one knows whats going to happen!

I am very lucky and so blessed to have so many people

supporting me through life's journey including

the wonderfil Shaun Miller Foundation

without you guys I don’t know where we would be!

I thank God everyday for where I am today!

I'm so blessed to have so many amazing friends

and family supporting me through everything!

And I am very proud to be an Ambassador

for my loving and precious friend Shaun

and his wonderful Foundation

that is helping in my today journey's.

'Live Life To The Fullest'

Sophie XO